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Discussion on world-sickle-cell-anaemia-day – Sickle Cell Anaemia | Google Groups

Recognition of sickle-cell anaemia as a public health priority
Angola, Austria, Belgium, Benin, Brazil, Cameroon, Cape Verde, Central
African Republic, Comoros, Congo, Côte d’Ivoire, Democratic Republic
of the
Congo, Djibouti, France, Gabon, Ghana, Monaco, Senegal, Togo and
Zambia:
draft resolution

Recognition of sickle-cell anaemia as a public health problem

The General Assembly,

Recognizing the need to promote better physical and mental health,
bearing in
mind the Universal Declaration of Human Rights1 and other relevant
human rights
instruments,

Welcoming World Health Assembly resolution WHA59.20 of 27 May 2006 and
resolution 33 C/22 of the General Conference of the United Nations
Educational,
Scientific and Cultural Organization of 19 October 2005, and taking
note of decision AU/Dec.81 (V) adopted by the Assembly of the African
Union at its fifth ordinary
session, held in Sirte, Libyan Arab Jamahiriya on 5 July 2005,

Recognizing that sickle-cell anaemia is one of the world’s foremost
genetic
diseases, that it has severe physical, psychological and social
consequences for
those affected and their families, and that in its homozygote form it
is one of the
most lethal genetic diseases,

Aware of the need for greater international cooperation, including
through
partnerships, to facilitate access to education, management,
surveillance and
treatment for sickle-cell anaemia,

Recognizing that proper management of sickle-cell anaemia will
contribute to
an appreciable decrease in mortality from malaria and in the risk of
HIV infection,
Recalling the Abuja Declaration to Roll Back Malaria in Africa of 25
April 2002 and the global Roll Back Malaria initiative,
__________________
1 Resolution 2/7 A (III).
2 See A/55/240/Add.1, annex.
A/63/L.63
2 08-66146

Taking note of the reports of the first, second and third
international congresses of the Sickle-Cell Disease International
Organization, held in Paris on
25 and 26 January 2002, in Cotonou from 20 to 23 January 2004 and in
Dakar from 22 to 24 November 2006, respectively, and the report of the
first global
consultations on sickle-cell anaemia, held in Brazzaville from 14 to
17 June 2005,
Recognizing that education, information and communication technologies
should play a crucial role in preventing sickle-cell anaemia and that
there is an
urgent need to create effective research and training programmes in
the countries
most affected by this disease,

1. Recognizes that sickle-cell anaemia is a public health problem;

2. Underlines the need to raise public awareness about sickle-cell
anaemia
and to eliminate harmful prejudices associated with the disease;

3. Urges Member States and the organizations of the United Nations
system
to raise awareness of sickle-cell anaemia on 19 June each year at the
national and international levels;

4. Encourages Member States, as well as United Nations agencies, funds
and programmes, international institutions and development partners,
to support
health systems and primary health-care delivery, including efforts to
improve the
management of sickle-cell anaemia;

5. Invites Member States, international organizations and civil
society to
support the efforts being made to combat sickle-cell anaemia,
including as part of
health-system strengthening efforts, in the various development
programmes, and to encourage basic and applied research on the
disease;

6. Urges the Member States in which sickle-cell anaemia is a public
health
problem to establish national programmes and specialized centres for
the treatment of sickle-cell anaemia and to facilitate access to
treatment;

7. Requests the Secretary-General to bring the present resolution to
the
attention of all Member States and organizations of the United Nations
system.

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One response

  1. Reblogged this on Toward Change and commented:

    It is present on four continents: in sub-Saharan Africa and in the Maghrib, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil,Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). It is estimated that 500.000 are born every year with this severe and invalidating condition and that 50% of them will die before the age of 5 years. Trans-continental, SCD is also trans-ethnic and affects black populations from African origin and Arabic, Indian and Caucasian populations from Southern #Europe.

    Resolution 33 C/22 of the General Conference of the United Nations
    Educational, Scientific and Cultural Organization of 19 October 2005, and taking note of decision AU/Dec.81 (V) adopted by the Assembly of the African
    Union at its fifth ordinary session, held in Sirte, Libyan Arab Jamahiriya on 5 July 2005.

    September 22, 2016 at 11:01 pm

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